Tilly has Dravet Syndrome, a rare genetic epilepsy which causes seizures that could kill her. Their request to Birmingham Children's Trust for respite was refused with the trust suggesting training grandparents to help, even though the family had told them that was not possible.
Фото: Razmik Zackaryan / URA.RU / Globallookpress.com
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"To some people, this is tantamount to, 'we own this bit of the moon, we're going to operate here and and you can't come in'," he explains.
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